Greek Alliance of Rare Diseases - An umbrella organisation which supports patients who suffer from a rare disease and their families

Διαφήμιση Ημέρας Σπανίων Παθήσεων 2009

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Alliance
Aims of the alliance
Realisation targets
To whom appeals to
Information-Contributions

Alliance

The Greek Alliance for Rare Diseases is a non profitable organization, which aims to extend the knowledge of the common areas of rare diseases, both genetic and non, through information gathering, research and mutual assistance, throughout Greece, and genetic by cooperation within Europe and the rest of the world.
The alliance aims to be a strong institution to illuminate the problems faced by people who suffer from rare diseases as well as problems of their families and carers who support them.

Aims of the alliance

The Greek Alliance for Rare Diseases was established in 10-07-2003 by a group of distinguished scientists and representatives of existing patients' associations with the support of Eurordis - The European Rare Diseases Association.
The aims of the Greek Alliance for Rare Diseases are:

Realisation targets

To achieve these aims the Greek Alliance for Rare Diseases:

To whom appeals to

Greek Alliance for Rare Diseases appeals to:

Each rare disease, whether it already has an association or not, has exactly the same needs.For this reason it is absolutely necessary for people who either suffer themselves from rare disease or any member of their close enviroment, to be united under the umbrella of "Greek Alliance for Rare Diseases"    for the benefit of all.


The Greek Alliance Of Rare Disease
Mrs. Marianna Lambrou
Timotheou St 99-101 , 16232 Athens - Greece
Τel.+30 210 7660989
Fax.+30 210 7660991
E-mail :gr-pespa@otenet.gr

For any financial contribution our bank account is:
ALPHA BANK IBAN:GR 2401401070107002002004039


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