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The Greek Alliance for Rare Diseases is a non profitable
organization, which aims to extend the knowledge of the common areas of rare
diseases, both genetic and non, through information gathering, research and mutual
assistance, throughout Greece, and genetic by cooperation within Europe and
the rest of the world.
The alliance aims to be a strong institution to illuminate the problems faced by people who suffer from rare diseases as well as problems of their families and carers who support them.
Aims of the alliance
The Greek Alliance for Rare Diseases was established in 10-07-2003
by a group of distinguished scientists and representatives of existing patients'
associations with the support of Eurordis - The European Rare Diseases Association.
The aims of the Greek Alliance for Rare Diseases are:
To achieve these aims the Greek Alliance for Rare Diseases:
To whom appeals to
Greek Alliance for Rare Diseases appeals to:
Each rare disease, whether it already has an association or not, has exactly the same needs.For this reason it is absolutely necessary for people who either suffer themselves from rare disease or any member of their close enviroment, to be united under the umbrella of "Greek Alliance for Rare Diseases" for the benefit of all.
The Greek Alliance Of Rare Disease
Mrs. Marianna Lambrou
Timotheou St 99-101 , 16232 Athens - Greece
Τel.+30 210 7660989
Fax.+30 210 7660991
For any financial contribution our bank account is:
ALPHA BANK IBAN:GR 2401401070107002002004039
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