• EURORDIS : European Organisation of Rare Diseases
• ORPHANET : A database of rare diseases and orphan drugs for the general public.
• ΕΜΕΑ : European Medicines Agency
• COMP : Committee on Orphan Medicinal Products
• CPMP : Committee on Orphan Medicinal Products for Human use
• CVMP : Committee on Orphan Medicinal Products for Veterinary use
• ΕFPIA : European Federation of Pharmaceutical Industries and Associations
• EPPOSI : European Platform for Patients' Organizations, Science and Industry
• EuropaBio : The European Association for Bioindustries
• CLIMB : Children Living with Inherited MetaBolic diseases
• IFPMA : International Federation of Pharmaceutical Manufactuers Association
• ORD : Office for Rare Diseases
• NORD : National Organization for Rare Diseases (USA)
• NIH : National Institutes for Health
• EUROCAT : European network of population based registries for congenital anomalies
• Rare Didease Day : International Day for Rare Diseases

• Office Of Rare Diseases

• Directives, press announcements of the COMP and public opinion summaries for each product
• The Community registrar for orphan drugs and the catalogue of the criteria set by the Community and the state-members for the orphan drugs.
• Fifth programme-frame
• Community programme of action for the rare diseases (1999-2003)

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